Access: OIS Impact Model (en)

This impact model was developed with a diverse set of internal and external stakeholders in two workshops. It was the goal to collaboratively elaborate the desired effects of LBG OIS initiatives for involvement and engagement. 

The OIS impact model makes the effect of involvement and engagement activities visible and transparent and thus guides the design of all OIS initiatives. In addition, the impact model can be used to evaluate existing OIS initiatives in order to identify in how far they achieve the impact they intend to and adjust them accordingly.

For more information, visit the OIS Impact Website.

Access: PPIE "How to" Guide

In this guide, you find a detailed description about what PPIE stands for, why it is necessary to get involved, and how we co-created this ‘How to’ guide (Chapter 1).  In Chapter 2, you will find the main outcomes from all co-creation workshops regarding PPIE principles. This includes patient and public interaction, relevant governance structures (including budget and project oversight) and the organizational framework that facilitates PPIE activities. In chapter 3, we provide self-assessment checklists and present self-assessment PPIE tools. Chapter 4 covers suggestions on how to monitor PPIE activities, followed by additional resources such as key papers, databases or other important guides (Chapter 5).

Access: Short Guide

This guide has been developed with the help of a working group comprising of patient representatives and research funders and has been submitted for review by independent    academic researchers. Its main goal is to encourage fruitful, sustainable and enduring partnerships between scientists and patient organisations, co-leading the way for systematic patient-centered research.

• NIHR INVOLVE Briefing Notes for Researchers:
  http://tiny.cc/BriefingNotes
• NIHR INVOLVE: Guidance on co-producing a research project: https://www.invo.org.uk/ wp-content/uploads/2019/04/Copro_Guidance_Feb19.pdf
• NHS: Public Engagement - a practical guide: https://senseaboutscience.org/wp-content/uploads/2017/11/ Public-engagement-a-practical-guide.pdf 
• How to partner with young people, Orygen, Australia: https://www.orygen.org.au/About/Youth Engagement/Resources/YouthPartnershipToolkit.aspx 

Access: GRIPP2 Form (en)

GRIPP2-LF represent the first international evidence based, consensus informed guidance for reporting patient and public involvement in research.  GRIPP2 aims to improve the quality, transparency, and consistency of the international PPI evidence base, to ensure PPI practice is based on the best evidence.

Access: GRIPP2 BMJ (en)

Patient and public involvement in health and social care research is increasingly important, helping to ensure that the research focuses on issues relevant to patients and the public. A wide variety of research papers with public involvement has been published over the past decade, yet many of these papers give little information about how members of the public were involved and what the result of this involvement was. This means that learning from these studies is limited. Working closely with patients and the public, we have developed guidance for people writing about public involvement to suggest what details to report. We carried out a thorough assessment of studies in this area and used a Delphi survey to ask 143 people who are knowledgeable about this topic for their opinions about what should be included in the guidance. The Delphi method consists of a series of questionnaires over a specific time period to find out whether there is agreement among experts about the topic under discussion. We found strong agreement on a number of issues to include in the guidance from the 112 people who completed three rounds of Delphi questionnaires. We also held a one day meeting to find out whether any additional issues for which we hadn’t reached agreement should be included in the guidance.

As a result of this three stage project, we developed two versions of the guidance, a short version of the guidance (GRIPP2-SF), which can be used when reporting public involvement in any study, and a long version (GRIPP2-LF) to use when the study is mainly about public involvement in research. Our aim in developing this guidance is to promote good quality reporting of public involvement, to inform good practice and create effective public involvement.